Sturge-Weber Syndrome Center: Events
Bands on the Bay 2010
April 25th
Bands on the Bay is a concert and auction fundraiser supporting the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute. Held every spring in Friendship Maryland, Bands on the Bay promises a fun-filled day of live music, silent and live auctions, and great food and drink on the Chesapeake Bay. This year's event will feature music by The Doug Segree Band, Orlando Phillips, and Jefe Solo.
Bands on the Bay was created by the DeCesaris and Heck families following the birth of Jenna Heck, who was diagnosed with a congenital neurological disorder called Sturge-Weber Syndrome (SWS).
For more information about Bands on the Bay or to show your support for individuals with Sturge-Weber syndrome by purchasing tickets, donating auction items, becoming an event sponsor, or making a donation, visit www.bandsonthebay.org.
6th Annual Tropical Realty of Suntree Golf Tournament Benefitting Sturge-Weber Syndrome
May 1, 2010 | Entry Deadline: April 25, 2010
Sign Up Today or learn more about the schedule, registration, and sponorship opportunities.
Sturge-Weber Syndrome Center: News
Baltimore Sun "Expert Advice: Birthmark could signal disorder" Dr. Anne Comi provides tips on how to determine when a birthmark might be a sign of something more. (January 2010)
NIH Expansion of Rare Diseases Clinical Research Network to Include Kennedy Krieger Institute (October 2009)
Research Update: The Hunter Nelson Sturge-Weber Center Provides New Insights into the Treatment of Patients with Sturge-Weber Syndrome (April 2009)
Heck Family and Dr. Anne Comi profiled in article in the Capital Gazette (April 30, 2009)
Baltimore Sun profiles local Annapolis family and their fundraiser for the Hunter Nelson Sturge-Weber Center (April 26, 2009)
Read article in Pediatric News on Dr. Anne Comi discussing brain involvement in Sturge-Weber Syndrome (February 2009)
Dr. Anne Comi discusses port-wine birthmarks and SWS with Pregnancy & Newborn magazine (September 2008)
Read article in Pediatric News on Dr. Anne Comi discussing the management of Sturge-Weber Syndrome (November 2007)
Hunter Nelson Sturge-Weber Center featured in front page story in the Baltimore Sun (September 30, 2007)
Woman's World magazine sheds light on SWS - read their profile of a Hunter Nelson Sturge-Weber Center patient and her family (April 3, 2007)
A Devastating Disease Beneath the Skin. Johns Hopkins Physician Update: Dermatology. Baltimore, MD. Fall 2002. p 4.
Press release: Hemispherectomy End Seizures in Many Older Children with Rare Seizure Disorder. Baltimore, MD. December 9, 2002.
Sturge Weber Center Unites Hopkins And Kennedy Krieger Resources Against Vascular Disease. Johns Hopkins Children’s Center News. Baltimore, MD. Fall 2002.
