h1 arrowSturge-Weber Center for Excellence: Welcome

How You Can Help and Center Funding The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute is dedicated to caring for patients with Sturge-Weber syndrome (SWS). The goals of the Hunter Nelson Sturge-Weber Center are to provide:

Breaking News:

To learn more about our recent finding of the somatic mutation causing Sturge-Weber syndrome and Port Wine Birthmark, please watch the video below or view the press release.

Answers About The Discovery

Dr. Comi answers your questions about the new discovery and what it means.

“Dr. Comi made us feel very comfortable. We felt confident that she really cared about the well-being and treatment of our [child].”

  1. Comprehensive diagnostic evaluation and coordination of clinical services
  2. Patient, family and physician medical educational services to maximize patient function and
  3. Conduct clinical and translational laboratory research aimed to improve the understanding and treatment of this disorder.

View our research updates and completed studies to learn more about our recent findings.

Expert physicians and health care professionals from a variety of disciplines including; neurology, ophthalmology, dermatology, neuroradiology, rehabilitation medicine and physical, occupational, and speech and language therapy, endocrinology, and neuropsychology work together to provide optimal treatment to meet the needs of these patients.

The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute was founded in Baltimore, MD in 2002 through the Kennedy Krieger’s University Center for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) collaboration with Johns Hopkins University.

Tribute to Hunter Nelson...

“I am happy to learn that KKI’s staff and physicians are dedicated to finding a cure for SWS patients. Truly a leading institute in this area and a role model for the health care delivery system in the U.S. Thank you Dr. Comi! She has made a huge difference in our lives.”