Sturge-Weber Syndrome Center: Center Funding and How You Can Help
We would like to thank the following funders for their generous and ongoing support for the Hunter Nelson Sturge-Weber Syndrome Center at Kennedy Krieger Institute:
Hunter's Dream for a Cure
Hunter's Dream for a Cure helps raise money for children with Sturge-Weber Syndrome and other neurological diseases. The foundation provides funding for research that could ultimately lead to a cure, a grant program for affected children and their families, and special needs programs in Colorado. The center was named in Hunter's memory to recognize the foundation's funding of nearly $500,000 as part of an ongoing commitment.
The Sturge-Weber Foundation's mission is to improve the quality of life for individuals with port-wine birthmarks, Sturge-Weber syndrome, and Klippel-Trenaunay syndrome. The Foundation strives to meet this goal by providing worldwide education and support and facilitating research that could ultimately lead to a cure. The foundation generously provided $50,000 in start-up funding for the KKI/JHMU-SWS Center during Fiscal Year 2004.
Vascular Birthmarks Foundation and Sturge-Weber Syndrome Community
The Vascular Birthmarks Foundation is an international charitable organization that provides support and informational resources for individuals affected by hemangiomas, port wine birthmarks, and other vascular birthmarks and tumors, sponsors relevant research and promotes physician education.
The Sturge-Weber Syndrome Community, a branch of the Vascular Birthmarks Foundation, provides support and services freely and upon a volunteer basis for individuals and families living with SWS and vascular birthmarks, while sponsoring research and promoting physician education and awareness, as well as education of the public at large.
*Both the Sturge Weber Syndrome Community and the Vascular Birthmarks Foundation combined have granted $10,000 for Dr. Eric Kossoff to study the use of the Atkin's diet in Sturge-Weber syndrome.
Bands on the Bay
Annual Sturge-Weber Syndrome (SWS) Concert & Auction honoring Jenna Heck and benefiting Hunter Nelson Sturge-Weber Syndrome Center at Kennedy Krieger Institute. This year the event will be held on April 29, 2007! Learn more...
How You Can Help
There are several ways that patients, families, and friends can support the Hunter Nelson Sturge-Weber Centerís mission. For more information, please contact the Kennedy Krieger Development Office. at (443) 923-7300.