h1 arrowSturge-Weber Syndrome Center: Additional Resources


Sturge-Weber Related Websites:

The websites listed below will help you obtain additional information about Sturge-Weber Syndrome (SWS). Please feel free to contact us with additional SWS related sites that you think would benefit those interested in learning more about SWS.


Kennedy Krieger Institute
www.kennedykrieger.org

Johns Hopkins Medicine
www.hopkinsmedicine.org

The Johns Hopkins University Dermatology Image Atlas
dermatlas.med.jhmi.edu/derm

Hunter's Dream for a Cure Foundation
www.huntersdream.org

The Sturge-Weber Foundation
Sturge-Weber Foundation's mission is to improve the quality of life for individuals with port-wine birthmarks, Sturge-Weber syndrome, and Klippel-Trenaunay syndrome. The Foundation strives to meet this goal by providing worldwide education and support and facilitating research that could ultimately lead to a cure. The foundation generously provided $50,000 in start-up funding for the KKI/JHMU-SWS Center during Fiscal Year 2004.
www.sturge-weber.org

Sturge-Weber Syndrome Community
Sturge-Weber Syndrome Community, a branch of the Vascular Birthmarks Foundation, provides support and services freely and upon a volunteer basis for individuals and families living with SWS and vascular birthmarks, while sponsoring research and promoting physician education and awareness, as well as education of the public at large.

*Both the Sturge Weber Syndrome Community and the Vascular Birthmarks Foundation combined have granted $10,000 for Dr. Eric Kossoff to study the use of the Atkin's diet in Sturge-Weber syndrome.
swscommunity.org

Vascular Birthmarks Foundation
Vascular Birthmarks Foundation is an international charitable organization that provides support and informational resources for individuals affected by hemangiomas, port wine birthmarks, and other vascular birthmarks and tumors, sponsors relevant research and promotes physician education. www.birthmark.org

Johns Hopkins Department of Neurology/Neurosurgery
www.neuro.jhmi.edu


NINDS Sturge-Weber Syndrome Information Page
www.ninds.nih.gov/disorders/sturge_weber/sturge_weber.htm


Sturge-Weber Foundation UK
www.sturgeweber.org.uk


Sturge-Weber Syndrome Community Canada
www.swscommunitycanada.org


Search PubMed for Sturge-Weber
www.ncbi.nlm.nih.gov/PubMed/