Sturge-Weber Syndrome Center: Additional Resources
- Glossary of Sturge-Weber related terminology
- The Sturge-Weber Syndrome and Ischemia in the Immature Brain Research Program
- Hunter Nelson Sturge-Weber Center in the media
Sturge-Weber Related Websites:
The websites listed below will help you obtain additional information about Sturge-Weber Syndrome (SWS). Please feel free to contact us
Kennedy Krieger Institute
Johns Hopkins Medicine
The Johns Hopkins University Dermatology Image Atlas
Hunter's Dream for a Cure Foundation
The Sturge-Weber Foundation
Sturge-Weber Foundation's mission is to improve the quality of life for individuals with port-wine birthmarks, Sturge-Weber syndrome, and Klippel-Trenaunay syndrome. The Foundation strives to meet this goal by providing worldwide education and support and facilitating research that could ultimately lead to a cure. The foundation generously provided $50,000 in start-up funding for the KKI/JHMU-SWS Center during Fiscal Year 2004.
Sturge-Weber Syndrome Community
Sturge-Weber Syndrome Community, a branch of the Vascular Birthmarks Foundation, provides support and services freely and upon a volunteer basis for individuals and families living with SWS and vascular birthmarks, while sponsoring research and promoting physician education and awareness, as well as education of the public at large.
*Both the Sturge Weber Syndrome Community and the Vascular Birthmarks Foundation combined have granted $10,000 for Dr. Eric Kossoff to study the use of the Atkin's diet in Sturge-Weber syndrome.
Vascular Birthmarks Foundation
Vascular Birthmarks Foundation is an international charitable organization that provides support and informational resources for individuals affected by hemangiomas, port wine birthmarks, and other vascular birthmarks and tumors, sponsors relevant research and promotes physician education. www.birthmark.org
Johns Hopkins Department of Neurology/Neurosurgery
NINDS Sturge-Weber Syndrome Information Page
Sturge-Weber Foundation UK
Sturge-Weber Syndrome Community Canada
Search PubMed for Sturge-Weber